BEYOND
STILLNESS

Stories after Stroke

Our mission is to empower stroke survivors to articulate and share their stories of wisdom, purpose, connection, and hope.

The Problem

Someone in the United States suffers a stroke every 40 seconds. Stroke is also a leading cause of serious long-term disability in this country. There are nearly 7 million people in the U.S. living with the effects of stroke (UTMB Health). Stroke survivors report loss of identity, purpose, and connection in recovery. Our team is working to address that.

Our Approach

Beyond Stillness hosts personalized guided reflection sessions for stroke survivors, helping them reframe and share their recovery stories through themes of wisdom, purpose, connection, and hope. This creates a double win: we empower guests and inspire listeners on their recovery journeys, while our gatherings further cultivate an engaging community.

Your Story

Sharing your stroke recovery story makes a difference. We believe that as part of the stroke community, you are more than supportive, you are inspirational.

“Not only are stories how we make meaning out of life events, they are how we connect with other people and form relationships.”

— Strong Story Lab

A Moment of Pause 
for Storytelling and Reflection

Each guest meets weekly with Beyond Stillness via Zoom for about two months to reflect on their recovery and craft their story. In the final session, they record their story and interview for publication on the Beyond Stillness: Stories After Stroke podcast.

Episodes are released weekly on major podcast platforms (Apple Podcasts, Audible, Spotify, etc.) and air throughout the week on Stroke Warrior Radio.

In 2005, Molly Buccola, Beyond Stillness Founder, Facilitator, and Host, suffered a stroke due to venous sinus thrombosis.  A clot the size of a whole pinky forced blood into both hemispheres of her brain. When she woke from the coma, her left side was paralyzed.  Molly’s family served as carepartners as she relearned to walk, eat, bathe, on and on.  Once she regained enough abilities to hide the effects, she tried to “move on” with her life.  Now she knows, stroke survivors never fully “move on.” They move beyond.

Molly found that stroke offers a powerful, life-changing, shift in perspective.  She founded Beyond Stillness: Stories After Stroke to offer pause for storytelling and reflection.  Ultimately, Beyond Stillness is a welcoming environment that reveres the movement beyond stroke’s paralysis.  Still moments unite humanity and divinity.

In an interview, Molly shared, “I’m inspired by each and every stroke survivor I meet. I have found a stroke community and our conversations and connections are purposeful. Every story is unique yet there are beautiful threads of insight and growth that tie our community together. Together we cultivate hope. Together we thrive beyond stillness. We are more than supportive. We are inspirational.”

Testimonials

  • Michelle

    I now have a NEW way to think about my story that I have told a million times in the past twelve years... Beyond Stillness couldn't have made this easier to participate and I highly recommend - both exploring your story and as a guest and listening to the wide variety of guests/perspectives.

    The way Molly weaves each piece of a story together is like watching an orchestra conductor in their element - kind of mesmerizing and impressive. I guess that's why I've been listening to Beyond Stillness since it began. I know many of the guests from the show, but each story reveals something new about them that I hadn't known before. I think this sets Beyond Stillness apart from other stroke podcasts (which is what keeps me coming back for more!). - Michelle

  • Angel

    Beyond Stillness allowed me to be myself and share what happened to me.  The story crafting process reminded that I'm an overcomer.  I'm strong.  I have a voice…I’m a big advocate with a purpose.  You give me purpose.  It’s another way to go.  I have so many things in my head to share.  You helped me.  Thank you for giving me the platform.  I thought it was all over for my voice but I have a new purpose.

  • Karla

    I really enjoyed the process…it made me remember how strong I really am. It made me very, very proud of myself and want to share more. Now, I want to find more ways to help others. This process was so awesome!

  • Tara

    The meetings really got my creative juices flowing. I thought I wouldn’t like writing, but I ended up enjoying it! Beyond Stillness really helped me organize my story into a structured format, that would have otherwise been all over the place. It is so beautiful!!  The weekly meetings & homework kept me engaged excited! I think so many of us can benefit from hearing each other’s stories in this way. You are forever imprinted in my heart. This brings me so much joy & happiness.  My story can touch and help other survivors, plus it validates my purpose.  Thank you so much for allowing me to be a part of Beyond Stillness.

  • Tania

    Until this process I would craft the story I thought others wanted to hear, the perspective that made sense for that audience. I got the chance to reflect on some areas of recovery that I had yet to explore. I took a story writing workshop last fall, and while that process was interesting, it didn't pull anything near the caliber of what came out of this. This process was supportive and challenging. The homework was manageable and well paced, it supported the care and feeding of the story. I'm so thankful for this opportunity, it has meant a lot to me.

  • Antonio

    The meetings were fantastic, fun and occasionally emotional. Molly delicately left a safe, open, space for those emotions to settle. The writing component provided a healthy opportunity to express and process stroke associated feelings that are often lingering and require to be brought to the surface in order to better understand them, and potentially provide guidance for others…I've learnt/learning to become more confident within myself and my achievements, while staying true and having faith in who I am…The experience has been fulfilling and cathartic. It's an honourable quest that Beyond Stillness has embarked upon, empowering many stroke survivors to find their voice and share their stories.

  • Michael

    Just to have the opportunity to share my experiences both good and bad, and to be heard and validated gave me the confidence to believe that I had a story worth sharing, and the way Molly listens and picks out sentences, ideas, and themes gave me confidence that we were going to find a story that was really going to resonate. She simultaneously supported me and gave me the freedom to explore. I'm really proud of the story we came up with and I never would have had that without the thoughtful time, patience, and active listening that Molly provides…A great big giant THANK YOU for this opportunity and for the experience.  My whole story is about feeling invisible after stroke and what it takes to feel seen.  Working with Molly and the time she spent with me profoundly moved me. She sees me in the way I’ve always HOPED to be seen.  And for that, I am eternally grateful.

  • Ricardo

    Molly and Beyond Stillness: Stories After Stroke are the best. The conversations are as intimate as therapy. This opportunity came to me at the right time. I needed to tell my story. I hope that this podcast continues to help stroke survivors and their families. I hope more people share their stories. Molly is a person that you can easily talk to and she understands. I thank God who showed me that it wasn't time for me to go and that it was time for me to get up, speak, and help people after He saved me. I hope all stroke survivors find Molly and Beyond Stillness: Stories After Stroke so they can listen to each other’s stories, learn, and know they aren’t alone. They will know when it’s time to get up, speak, and help people too.

  • Nikki

    Meeting with Molly was an incredibly meaningful experience! She is so kind and encouraging, and helped me identify the important things I wanted to say. Even after the first meeting, I felt like I knew Molly and was so comfortable sharing. It was a true honor to work with Molly and gain a deeper insight into myself as a caregiver. I really came to the understanding that I have also been on a recovery journey, separate from my husband’s. I am more able to articulate my “why” for Stroke Awareness Vermont. And I learned that I have important insights to share with other caregivers.

  • Tracey

    The 1.5 months I spent working with Molly in conducting my story was an absolute invigorating experience. The zeal Molly brings each time we connect makes you feel so special. It’s one thing to get the opportunity to tell your story but she brings your story to life. I can say it gave me so much pleasure to relive the memories of how the stroke occurred.  I’m five years post and have maybe blurted a synopsis a couple umpteenth times , BUT never from an outside perspective bringing these type of details about. I now overstand my purpose even more clear! Molly I cannot Thank you enough for your timeless service in giving my thoughts a home!

  • Barry

    When I started working with Molly, I didn't know what to expect. To my delight, I found the process of crafting my stroke story enlightening and creative. Molly helped me so much putting my thoughts and emotions into words that captured the essence of my story. I discovered that by sharing my story, I could encourage other stroke survivors to seize opportunities to find fulfillment in their lives.

  • Hub

    The process and reflective conversations were very enjoyable. They helped me tell my story in a meaningful way. Each week, I shared stories about what and who was helpful throughout recovery. I would come up with more and more between weekly meetings. I got to focus on the meaningful and motivating parts of recovery.

  • Sue

    Meeting Molly Buccola and being a small part of Beyond Stillness was a fantastic journey. Molly is the most supportive, encouraging, and joyful/grateful person. I looked forward to our weekly Zoom meetings as I told her of my stroke and health problems. She asked the right questions, always listening to my heart more than my words. Going through this process and revisiting my stroke all over again strengthened my confidence and purpose. Molly, you truly are an angel on earth. I can never thank you enough!

  • Ray

    It was so easy to share my story with Molly. Not only is Molly one of the nicest people I know, her deep and spiritual soul helps you not only share your post-stroke changes and challenges, but for me I discovered a deeper meaning to the word HEALING. I miss our chats.

  • Shirley

    Once I went within it just flowed out of me and with Molly’s kind encouragement and help with words, it has become a very deep personal story to me and totally my truth.

  • John

    If anyone is on the fence about doing it. I would encourage you. It will help you expunge any pent up frustrations. Molly doesn't bite. She will gently guide you through, never altering the spirit of what you want to say. And the audience is made up of either people who have lived your experience and can relate, or people who need to hear your experience. Don't be scared. You have been through much much much worse.

  • Greg

    Working with Molly from Beyond Stillness was rough but worth it. It was hard to go back through my early days of stroke recovery but Molly gave me a judgment free space to tell my truth. If you are ready to tell your stroke story but don't know how, contact Beyond Stillness. You will not regret it.

  • Anna

    I would highly recommend working with Molly on the Beyond Stillness podcast. The process that Molly takes you through to craft your story is gentle and accessible for all. As a stroke survivor herself, Molly completely gets what you're trying to say and what you want to get across. I loved the whole process of working on this and would recommend going on this podcast. Molly's warmth and kindness shines through in the amazing work she is doing on the podcast to shine a light on survivors and their stories.

  • Humphrey

    The process of building the story was both easier and harder than I expected. Easier because I suffered no writer's block. Being damned up for 10 years, what I wanted to say came flowing out easily, and fitting it into the allotted time, forced me to focus on what was the singular, most important aspect of my experience. Harder because going through the life changing events of the stroke, it is impossible to explain using words. Only someone who themselves has been on that road, can fill in where my words fail to capture. Harder also because I have one shot at telling the story accurately, and the weight of that was felt…

  • Humphrey Continued

    The weekly meetings with Molly were a way to take something raw, and get it to fit the format. She was a gentle editor. Always positive. Never dismissive (though at times she probably should have been :-)) By the time we reached a finished product, I was very happy with the final result. What had been left on the cutting room floor wasn't because it was invalid. It just wasn't useful for this moment and this time.

  • Phipps

    Meeting Molly Buccola and being a small part of Beyond Stillness was a fantastic journey. Molly is the most supportive, encouraging, and joyful/grateful person. I looked forward to our weekly Zoom meetings as I told her of my stroke and health problems. She asked the right questions, always listening to my heart more than my words. Going through this process and revisiting my stroke all over again strengthened my confidence and purpose. Molly, you truly are an angel on earth. I can never thank you enough!

  • Kristi

    I’m so grateful for this opportunity. I think I’ve learned so much just from speaking with Molly and listening to prior podcasts. I wish I’d have known about this earlier in my recovery. I really would have benefitted from more realistic expectations, knowing I’m not alone in this and feeling reassured I’m not the first or only person to be struggling with recovery. I hope Beyond Stillness will please market this to recovery facilities. Such a great tool for patients from people who’ve been in and through the struggle legit!

Connect with Us

Would you like to share how a guest’s story impacted your own recovery? Are you interested in crafting your own stroke recovery story or nominating an inspirational stroke survivor in your life to do so? Or maybe you have questions or comments. We’d love to hear from you!